Press Releases
Monday 9 December 2024
No Early Christmas Present for Brain Cancer Patients
Brain Tumour Support NZ is disappointed that Pharmac has decided not to fund bevacizumab for recurrent glioblastoma, the most common and aggressive type of primary brain cancer in adults.
Tuesday 1 October 2024
Harmonies for Hope - A Charity Gala to raise funds for Brain Tumour Support NZ
Brain Tumour Support NZ is thrilled to announce the Harmonies for Hope Charity Gala, set to take place in Wellington on Friday 1st November as part of International Brain Tumour Awareness Week (26 October to 2 November 2024).
Wednesday 29 May 2024
Brain Tumour Support NZ welcomes report on radiation oncology services in New Zealand
Brain Tumour Support NZ welcomes the recently released report but says it paints a sorry picture of the state of radiation oncology services in New Zealand and that successive governments have failed to invest sufficiently in the sector to keep pace with demand.
Thursday 9 May 2024
Make May Matter: Brain Tumour Support NZ Launches “No Going Back” Campaign for Brain Tumour Awareness Month
Brain Tumour Support NZ has launched a new fundraising platform “No Going Back” to mark the start of their Brain Tumour Awareness Month campaign – Make May Matter.
Wednesday 24 January 2024
Brain Tumour Support NZ Appoints Sarah Verran as Inaugural Chief Executive
Brain Tumour Support NZ is delighted to announce the appointment of Sarah Verran as its inaugural Chief Executive. Sarah brings many years of marketing experience in both commercial and non-profit organisations, along with vast governance experience in the disability sector
Thursday 26 October 2023
Brain Tumour Support NZ celebrates International Brain Tumour Awareness Week 2023
From 28th October to 4th November, Brain Tumour Support NZ will join patient advocates around the world in marking the 2023 International Brain Tumour Awareness Week.
Wednesday 13 September 2023
Access to brain cancer drug widened but newer treatment remains unfunded
Brain Tumour Support NZ welcomes the decision by Pharmac to widen access to the brain cancer drug temozolomide from 1st October 2023.
Wednesday 19 April 2023
Brainy Beanies Exhibition Returns to Hamilton
For five days in May, The Nancy Caiger Gallery at The Meteor will once again be filled with an array of beautifully handcrafted beanies as the Brainy Beanies Exhibition returns to Hamilton.
Brainy Beanies is a unique fundraising initiative from Brain Tumour Support NZ that encourages crafters from around the country to create and donate beanies for this special exhibition which runs from 3rd to 7th May 2023.
Friday 28 October 2022
International Brain Tumour Awareness Week 2022
International Brain Tumour Awareness Week (29 October to 5 November 2022) is a global campaign where the international brain tumour community comes together to raise awareness about brain tumours. This year, Brain Tumour Support NZ is showcasing the stories of five ordinary Kiwis who are adding their voices to the global chorus advocating for increased awareness, more research, and better treatments for brain tumour patients.
Tuesday 27 April 2022
Brainy Beanies Exhibition to Launch Brain Tumour Awareness Month
Brainy Beanies is a craft exhibition with a difference. For the past five months Brain Tumour Support NZ has encouraged crafters from around the country to create original beanies for the exhibition with the message “created with love, by someone who cares.”
Tuesday 15 March 2022
Created with love, by someone who cares
Brain Tumour Support NZ launches Brainy Beanies campaign
“We wanted a campaign where people could participate in a safe way yet retain the sense of kinship and belonging of a community event. Brainy Beanies seemed to tick all the boxes.”
Thursday 28 October 2021
Shining a light on brain tumours
International Brain Tumour Awareness Week 30 October - 6 November 2021
This weekend Kiwis will be out trick or treating and dressing up in their scariest costumes for Halloween, with appropriate physical distancing of course. But for around 1,200 New Zealanders who were diagnosed with a brain tumour in the past year, the shock and fear on hearing their doctor utter the words “you have a brain tumour” trumps anything that Halloween can dish up.
Wednesday 13 October 2021
Brain Tumour Support NZ mourns the passing of Jemima Gazley
Brain Tumour Support NZ is saddened to learn of the death of Wellington teenager Jemima Gazley, aged 15, from brain cancer.
Wednesday 3 February 2021
Report reveals stark inequities for people with brain cancer in New Zealand
Data included in a comprehensive report released yesterday by the Cancer Control Agency reveals the dire situation faced by New Zealanders diagnosed with brain cancer. The inaugural “State of Cancer in New Zealand 2020” report provides a snapshot on the current state of cancer care in Aotearoa, New Zealand.
Tuesday 8 December 2020
Walking for brain tumour awareness
On 7 September 2020, brain cancer survivor Kate Coatsworth set out on foot from Cape Reinga to begin her epic journey “Beating The Track For Brain Cancer”, traveling the length of the country along the Te Araroa Trail to raise awareness about brain cancer and to fundraise for Brain Tumour Support NZ.
Thursday 22 October 2020
International Brain Tumour Awareness Week
Brain Tumour Support NZ has announced a series of events across New Zealand to mark the 2020 International Brain Tumour Awareness Week (24 – 31 October).
Monday 31 August 2020
Epic Journey to Raise Funds for Brain Cancer
Brain Tumour Support NZ is delighted to be confirmed as the charity partner for Beating The Track For Brain Cancer, an awareness and fundraising campaign by Thames woman, Kate Coatsworth, to traverse the entire length of Aotearoa, New Zealand. Beating The Track For Brain Cancer is no ordinary assignment. In 2019, shortly after she moved to Sydney, Kate, at aged 33, was struck down by a glioblastoma multiforme - an aggressive type of brain cancer.
Thursday 16 July 2020
Brain Tumour Patients to get Support from Nelson Based Charity
Brain Tumour Support NZ, a Nelson based nationwide charity is launching their “Brain Boxes” - a pioneering initiative to support Kiwis across the length and breadth of Aotearoa New Zealand. Each Brain Box contains a number of essential items to support and provide information for brain tumour patients and their carers, including a set of six Patient Guides to help patients navigate their journey.
Friday 3 July 2020
Advocacy Organisations and Professional Societies from Across the Globe to Unite on Brain Tumour Patients’ Charter of Rights
Brain Tumour Support NZ joins seventy-five organisations from around the world to endorse the new Brain Tumour Patients’ Charter of Rights, a document intended to help initiate positive change in the care of people diagnosed with brain and central nervous system tumours.
Friday, 8 May 2020
Brain Tumour Support New Zealand
Brain Tumour Support NZ was founded when a group of people discovered what it is like to be diagnosed with a brain tumour and they realised how little support and information was available to them in New Zealand.
thursday, 21 November 2019
A Call for Funding of the Brain Cancer Drug Avastin
Brain tumour patients and carers joined health advocates from Patient Voice Aotearoa on the steps of Parliament today [21 November] to present a petition for government funding of the brain cancer drug Avastin. Brain Tumour Support NZ trustee, Chris Tse, presented the petition on behalf of Sel Leigh of the Tahu Hikuroa Foundation and the New Zealand brain tumour community.