Papers, Publications and Submissions
Presentation
Oral presentation at the Japan Society for Neuro-Oncology (JSNO 2024): “Understanding the burden of mIDH1/2 diffuse glioma and the complexity of navigating the patient pathway: insights from patients and caregivers” [3 December 2024].
Download a copy of the presentation below.
Poster
Poster presentation at Society for Neuro-Oncology (SNO 2024): “Understanding the burden of mIDH1/2 diffuse glioma and the complexity of navigating the patient pathway: insights from patients and caregivers” [22 November 2024].
Download a copy of the poster below.
Submission to Health Select Committee on Inquiry into the aged care sector’s current and future capacity to provide support services for people experiencing neurological cognitive disorders [19th August 2024].
Download the submission here.
View a recording of our oral submission to the Select Committee made by trustee Tania Anstiss here (start 38:50).
Submission
Together We Can Do Magic - Synergies of Healthcare and Patient Collaborations - A Case Study
This presentation was delivered by Brain Tumour Support NZ chair, Chris Tse, at the Asian Society of Neuro-Oncology Annual Scientific meeting (ASNO 2024) on 18th August 2024 in Singapore. Download the presentation here.
Presentation
Presentation
Bridging communities, breaking barriers, building progress - Highlights from the 5th Biennial World Summit of Brain Tumour Patient Advocates
This presentation was delivered by Brain Tumour Support NZ chair, Chris Tse, at the 2023 Annual Conference of the NZ Aotearoa Neuro-Oncology Society (NANOS) on 26th August 2023 in Queenstown, NZ. Download the presentation here.
Submission
Submission to Pharmac’s proposal to widen access to temozolomide following the discontinuation of lomustine [24th August 2023]
Read our submission here.
Presentation
Back to school with a brain tumour
The Brain Tumour Support New Zealand experience
This presentation was delivered by Brain Tumour Support NZ chair, Chris Tse, at the Day 1 plenary session of the 5th Biennial World Summit of Brain Tumour Patient Advocates in Vienna, Austria, on 26th June 2023. Download the presentation here.
Report
New Era Dawns for Neuro-Oncology in New Zealand
Report on the 2023 Inaugural New Zealand Neuro-Oncology Conference
On 11th February 2023, Brain Tumour Support NZ took part in this landmark event for the field of neuro-oncology in Aotearoa, New Zealand. Read the full report here.
Publication
Determining the Research Priorities for Adult Primary Brain Tumours in Australia and New Zealand: A Delphi Study with Consumers, Health Professionals, and Researchers
Current Oncology, Volume 29, Issue 12: https://www.mdpi.com/1718-7729/29/12/781
Co-authored by Chris Tse, chair of Brain Tumour Support NZ and senior advisor to the International Brain Tumour Alliance. Download the full paper here.
Submission
Submission to Pharmac’s review of rule 8.1b of the Pharmaceutical Schedule [20th December 2022]
Read our submission here.
Publication
Supporting Students With Brain Tumours
A guide for New Zealand teachers and families. Download here or request a hard copy by emailing hi@braintumoursupport.org.nz
Publication
Brain tumor patients and COVID-19 vaccines: results of an international survey
Neuro-Oncology Advances, 4(1), 1–8, 2022 | https://doi.org/10.1093/noajnl/vdac063
Co-authored by Chris Tse, chair of Brain Tumour Support NZ and senior advisor to the International Brain Tumour Alliance. Read here.
Submission
Brain Tumour Support NZ submission to the Pae Ora Legislation Committee on Pae Ora (Healthy Futures) Bill, 8 December 2021. Read here.
Publication
Brain tumors and COVID-19: the patient and caregiver experience
Neuro-Oncology Advances, 2(1), 1–16, 2020 | doi:10.1093/noajnl/vdaa104
Co-authored by Chris Tse, chair of Brain Tumour Support NZ and senior advisor to the International Brain Tumour Alliance. Read here.
Submission
Brain Tumour Support NZ submission to PHARMAC on their proposal to decline the funding application for bevacizumab (Avastin) for relapsed, recurrent glioblastoma multiforme (GBM), 26 July 2021. Read here.